What do family members of autistic people say of the work carried out by the CAPSi?



For families raising a child with Autism Spectrum Disorder (ASD), finding the right support can make a world of difference. In Brazil, Child and Adolescent Psychosocial Care Centers (Centro de Atenção Psicossocial Infanto-Juvenil [CAPSi]) offer a vital resource, providing interventions and guidance for autistic children and their families. But how effective are these services, and what do the families themselves say about their experiences?


A recent study published in March 2024 delves into this crucial question. Researchers explored the perceptions of families who utilize CAPSi services for their autistic children. While the findings highlight positive impacts on socialization, they also reveal a critical area for improvement: information sharing between professionals and families.


A Beacon of Hope: Improved Socialization for Autistic Children


The study brings encouraging news. Families reported observing improvements in their children’s social skills and interaction with others after engaging with CAPSi services. This aligns with a core challenge of ASD, where social interaction and communication can be difficult. The positive impact on socialization suggests that CAPSi’s interventions are effectively addressing a significant need for autistic children.


The Gap Between Professionals and Families: A Call for Clearer Communication


Despite the positive results, the research identified a crucial area for improvement. Families, while acknowledging the benefits of CAPSi, expressed a lack of understanding about the specifics of their child’s autism and the rationale behind the interventions used. This knowledge gap can create feelings of isolation and a sense of being excluded from the care process.


Imagine a situation where a parent observes a specific therapy technique being used with their child but doesn’t understand its purpose. This lack of clarity can lead to confusion, frustration, and even a diminished sense of trust in the professionals involved.


Bridging the Gap: How CAPSi Can Empower Families


The research suggests several ways CAPSi can enhance its services and foster stronger relationships with families:

  • Prioritizing Clear Explanations: Medical jargon and technical terms can create a barrier to understanding. Professionals should explain diagnoses, treatment plans, and intervention strategies in a clear, concise, and accessible manner.
  • Open Communication is Key: Regular communication with families allows for questions and concerns to be addressed. This fosters a collaborative approach to care, where families feel empowered to participate in their child’s treatment journey.
  • Family Expertise Matters: Families possess a wealth of knowledge about their children’s unique needs, strengths, and challenges. CAPSi can benefit from incorporating this expertise into treatment plans. By actively listening to families and valuing their input, professionals can create more individualized and effective interventions.


Fostering Collaboration for a Brighter Future


By prioritizing transparent communication and family involvement, CAPSi can create a more comprehensive and effective support system for families navigating the complexities of autism. Imagine a scenario where families not only witness improvements in their child’s social skills but also feel equipped to support these advancements at home, becoming active partners in their child’s development.


The study reminds us that successful interventions go beyond just the techniques employed. Building trust, fostering collaboration, and empowering families are essential ingredients for creating a supportive environment where autistic children can thrive. As CAPSi continues to evolve, prioritizing open communication and family involvement can ensure its services reach their full potential in supporting both autistic children and the families who love and care for them.




Leave a Comment

Your email address will not be published. Required fields are marked *

Scroll to Top